Tumor Banks

“One significant way that anyone with NF can make a contribution to NF research is to register with a national human specimen bank nearest you. The specimen banks need tissue taken within 24 hours from surgery or death to be useful for research … They supply investigators around the world with tissue from patients with neurological and development disorders … Your contribution can help find treatments for NF through research.”
Source: NF Inc-MidAtlantic, October 2005 newsletter, pg 3.

If you are a person with NF2, a great way for doctors and scientists to better understand the disease is by having access to NF2 tumors. Please consider donating your tumors to tumor banks when they are removed during surgery. Below is a list of some tumor bank locations. For more information on how you can send tissue specimen for NF research, please talk with your surgeon and contact the bank nearest to your area.

Human Brain and Spinal Fluid Resource Center (HBSFRC)

Los Angeles, CA
Phone: (310) 268-3536
Fax: (310) 268-4768
E-mail: info@brainbank.ucla.edu

Harvard Brain Tissue Resource Center

Belmont, MA
Tel: 1-800-BRAIN BANK (1-800-272-4622)
E-mail: hbtrc@mclean.harvard.edu

Northwestern University’s Brain Endowment

Chicago, IL
Tel: 312/908-9339
Fax: 312/908-8789
E-mail: CNADC-Admin@northwestern.edu

National Neurological Research Specimen Bank (NNRSB)

Location: California
E-mail: brainbnk@ucla.edu
Phone: (310) 268-3536
Fax: (310) 268-4768
** Alzheimer’s, Parkinson’s, Multiple Sclerosis, neuro-AIDS

University of Miami School of Medicine, Department of Cell Biology and Anatomy

Miami, Florida
Phone: (305) 243-6691
Fax: (305) 545-7166
E-mail: dhoodiman@med.miami.edu
E-mail: mlogan@med.miami.edu

The NICHD Brain and Tissue Bank

Baltimore, MD
Phone: 1-800-847-1539 or 410-706-1755
Fax: 410-706-2128
E-mail: btbumab@umaryland.edu

University of Miami Brain Endowment Bank

Miami, FL
1(800)UM-BRAIN (862-7246)
Tel: (305) 243-6219
Fax: (305) 243-3649

National Disease Research Interchange (NDRI)

Philadelphia, PA
Toll free: (800) 222-NDRI (6374)
Tel: (215) 557-7361
Fax: (215) 557-7154

National Institute of Neurological Disorders and Stroke

Bethesda, MD
Voice: (800) 352-9424 or (301) 496-5751
TTY: (301) 468-5981

The Coriell Cell Repositories

Camden, NJ
Tel: 800-752-3805 (in the United States), 856-757-4848 (from other countries)
Fax: 856-757-9737
Email: CCR@coriell.org

Living Bank

Houston, TX
Tel: 800-528-2971
E-mail: info@livingbank.org

International Institute for the Advancement of Medicine (IIAM)

Edison, NJ
Tel: (732) 661-2364
Fax: (732) 661-2527
24-Hour Service: 1-800-486-IIAM

Canadian Virual Brain Tumour Bank

Toronto, Ontario, Canada
Office: 416-603-5578
E-mail: Takyee Tung

The Brain Tumour Tissue Bank

London, Ontario, Canada
Toll Free 1-800-265-5106
Tel: (519) 642-7755
Fax: (519) 642-7192

Medical Schools

All US medical schools rely on the generosity of “anatomical donors” for the teaching of anatomy. You can tell them you have NF2 and you would like your body to go to NF2 research. Some medical school within the US are:

More complete listings:

Donating towards Ear Disorders:

The NIDCD National Temporal Bone, Hearing and Balance Pathology Resource Registry is a national resource for researchers and the public to promote human temporal bone research that is run by the National Institute for Deafness and Communication Disorders (NIDCD).

The Registry seeks individuals with ear disorders such as hearing loss or balance problems. To make an anatomical gift of their temporal bones and associated structures. For more information, call 800- 822-1327 or TDD 617-573-3888 or write NIDCD National Temporal Bone Registry, Massachusetts Eye and Ear Infirmary, 243 Charles Street, Boston, MA 02114-3096, or contact NF, Inc.-Mid-Atlantic.