News & Announcements

2013 Halloween Bash Raises Funds for Research

The two Halloween Bashes this year were successful and fun events.  Hardly, your typical fundraiser, these Halloween costume parties, now in their 9th year are a celebration of life featuring live (and loud) music, a few cocktails and good intentions. The first bash was held in Walnut Creek (east of San Francisco) and featured 300… Continue Reading →

Posted Under: News

Advocure Awards $3000 for NF2 Research

Advocure awards $3000 to Prof Hanemann and his research team at Plymouth University, UK Professor Oliver Hanemann and his research team at Plymouth University, UK were awarded $3000 for their research efforts in NF2. They had recently discovered how the loss of SOX10 function contributes to the phenotype of human merlin-null schwannoma cells. Oliver’s team… Continue Reading →

Hit TV Show, NCIS, Features NF2

Chris Waild is a writer/producer for the hit showNCIS, the #1 drama on television. He also is a friend and supporter of Leah Manth, a 12 year old from the Buffalo, NY area with NF2. In an effort to raise awareness, he wrote an episode titled “Lost at Sea” that includes a sub-plot about a… Continue Reading →

Posted Under: News

AdvocureNF2 Co-Sponsors the 3rd NF2: State of the Art Conference

AdvocureNF2 ( is please to co-sponsor the 3rd State of the Art International NF2 Conference ( This landmark gathering will be held in Manchester, UK, May 21-22, 2012. Leading doctors and scientists will come together at this major international scientific conference to share their clinical and research findings on Neurofibromatosis type 2 (NF2). “We are… Continue Reading →

Advocating for NF2 Research at the CDMRP-NFRP

Since 2008, AdvocureNF2 members have participated as Consumer Reviewers at the Neurofibromatosis Research Program (NFRP) under the U.S. governed Congressionally Directed Medical Research Programs (CDMRP), to ensure that NF2 interests are represented. We are helping to direct NF2 research and funding, as well as, to raise awareness about the devastation of this disease. If you… Continue Reading →