Trial Talk (TT) is a streamlined email group list created exclusively for NF2 patients (and/or family member with NF2), who are interested in finding a cure for NF2 (or at least, an effective treatment).
TT, provides a confidential forum to discuss or participate in clinical trials.
The main purpose of this group is to find and discuss potential medications, future clinical trials, side effects, and to discuss how as a community we can more effectively support the fundraising for these efforts, both directly, and by lobbying.
This group is NOT:
- An open topic group.
- A support group.
- Offering any medical advice for current treatment options.
Furthermore, this Group and its 200+ members are NOT representative of AdvocureNF2 (even though its inception was an Advocure initiative).
To subscribe, please send an email (along with a very brief introduction of self) to: