NF2 Clinical Trials & Studies

• Phase II Trial of Bevacizumab in Patients With Recurrent or Progressive Meningiomas
  ClinicalTrials.gov Identifier: NCT01125046.
  
  
• Lapatinib Study for Children and Adults With Neurofibromatosis Type 2 (NF2) and NF2-Related Tumors
  ClinicalTrials.gov Identifier: NCT00973739.
  
  
• PTC299 for Treatment of Neurofibromatosis Type 2
  ClinicalTrials.gov Identifier: NCT00911248.
  - PTC's Neurofibromatosis Type 2 Clinical Trial Overview
  - PTC's NF2 Trial FAQs
  - Additional infomation on the PTC299 trial for NF2.
  
  
• Concentration and Activity of Lapatinib in Vestibular Schwannomas
  ClinicalTrials.gov Identifier: NCT00863122.
  
  
• Natural History Study of Patients With Neurofibromatosis Type 2
  ClinicalTrials.gov Identifier: NCT00598351.
  
  
• Neurofibromatosis Type 2 Associated Color Vision Anomalies and Birth Defects: Incidence and Insights
  
  
• NF2 Patients Needed for New Vestibular Study at Harvard Medical School / Massachusetts Eye and Ear Infirmary.
  Adrian Priesol, M.D.
  phone: (617) 573-4148
  email: adrian_priesol@meei.harvard.edu
  "The general clinical goal for our study is to quantify motion perception for a range of vestibular disorders. A long-term goal is to develop new clinical tests to provide early diagnosis for vestibular disorders. These clinical research efforts are part of a broader basic science investigation of vestibular thresholds. At this time, we are seeking NF2 patients who have complete loss of vestibular (i.e., “balance/equilibrium organ”) function in both ears following surgical removal of tumors from both ears. Travel reimbursement would be paid for all qualifying volunteers."
  
  

Additionally, for a comprehensive listing of US, International, and/or privately supported clinical trials, please see these websites below:

NOTE: try inputing "neurofibromatosis 2".... or a NF2 tumor tissue type such as "Vestibular Schwannoma", "Schwannoma", "Meningioma", "Glioma", "Ependymoma", or "Astrocytoma", for example, within its respective search field.

• Clinicaltrial.gov - studies with search of NF2
  
  
• CERN Foundation, Collaborative Ependymoma Research Network
  Current Clinical Trials
  
  
• Children's Tumor Foundation (CTF)
  NF2 trials and studies
  
  
• National Institute of Health (NIH) Developed by the National Library of Medicine. clinicaltrials.gov
  clinicalstudies.info.nih.gov
  
  
• National Cancer Institute (NCI)
  www.cancer.gov
  
  
• International Federation of Pharmaceutical Manufacturers & Associates (IFPMA)
  IFPMA Clinical Trials Portal
  
  
• Clinical Trials Search Find clinical trials by condition, sponsoring organization, or location. Detailed nationwide listings with recruitment status, contact information available free of charge.
  www.clinicaltrialssearch.org
  
  
• CenterWatch
  
  
• Virtual Trials A premier source of information for brain tumors. As well as hosting many online support groups, chat rooms, newsletters, articles, and a database of clinical trials. Run by the Musella Foundation.
  www.virtualtrials.com