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VOICE YOUR SUPPORT FOR NF RESEARCH BY MAR 24!
The NFNetwork has created a written letter that urges Congress to sign their name to support federal funding for NF Research. Help generate funding for NF research with a simple click to voice your support!
Sponsored by NFNetwork
Are you a person with NF? Sign up with the NF Registry!
The registry needs at least 1,000 names with NF2 to show pharmaceutical companies the urgent need for NF2 clinical trials and research. Currently, only 392 have registered, so sign up and spread the word to speed up much needed research!
Sponsored by CTF
Advocure's Annual Halloween Bash
Takes place every October in NORTH & SOUTH CALIFORNIA.
All monies raised go towards NF2 research.
2014 location and times TBA.
Keith Kohnhorst is a writer of 3 books who donates five dollars of each book purchased towards AdvocureNF2. He has generously donated $1234 dollars from the sales of his children's book "The Brussels Sprout Man". If you would be interested to learn more about his books, email firstname.lastname@example.org. He is currently featured in our newsletter.
When: Saturday, April 12, 2014
Where: Boston Children's Hospital, MA
Sponsored by: Center for Neurofibromatosis & Allied Disorders (CNfAD)
When: April 16, 2014; 12pm - 1pm EST
Register at: braintumour.ca
When: Thursday, May 22, 2014
When: June 6 - 8 (forum), June 7 - 10 (conference)
Where: Both events held in Washington, DC
Sponsored by: CTF
NF2 Crew Ohio Gathering
When: Oct 10 - 12, 2014
Where: Columbus, OH
website and details coming in May