NF Registry

Are you a person with NF interested to partake in clinical trials? Click here to be part of the NF Registry

The NF Registry's mission is to identify people with NF who are interested in participating in clinical trials, as well as determining the commonality of specific characteristics of neurofibromatosis. Sponsored by CTF.

Funding Opportunity for NF2 Research!

CTF is currently accepting proposals to fund new approaches in the diagnosis and treatment of NF2-related tumours. Click here for more information and how you can apply.

Communications Survey for NF2 Patients

If you are a person with NF2, please click here to participate in a Communications Survey. Developed by Amanda Bergner who is the Senior Genetic Counselor and Clinical and Research Coordinator at Johns Hopkins.

Participation in this survey is voluntary. It is not necessary to answer every question and you may discontinue your participation in the project at any time. If you do choose to participate in the survey, your participation will be confidential.

Quality of Life Survey for NF2 Patients

If you are a person with NF2, please click here to participate in a Quality of Life Survey developed by Dr. Cosetti and her medical team at NYU-MC.

Your participation in this survey will help medical professionals better understand issues in the quality of life in NF2 patients and help to improve treatment for this disease. All information is completely anonymous and there is no "right" or "wrong" answer.